Amazing support helps improve our understanding of genetic heart disease in Australia
The latest enrolment on the National Genetic Heart Disease Registry has taken us to the 1000 mark!
This huge achievement is thanks to the collaborative efforts of key centres across Australia and the involvement of Australian families affected by genetic heart disease who are keen to help make a difference.
The valuable data we have collected from the 1000 people on the Registry is helping us identify better ways to diagnose and treat people with genetic heart disease. Ultimately, we hope this will improve and save lives both now and in future generations.
Reaching 1000 is a great start but we still have a long way before we enrol every Australian family with genetic heart disease (our lofty goal for the Registry!).
This goal may seem overly ambitious to some. But I’m inspired by the amazing positive support we’ve had from people with genetic heart disease, their families and their health professionals. If we continue to receive this great level of support, I’m confident we can get there.
If you have genetic heart disease and would like to join the Registry, please email me at firstname.lastname@example.org for the secure online link.