New Left Ventricular Noncompaction (LVNC) Information Sheet Online

Our LVNC information sheet is the latest addition to our genetic heart disease series for patients and families. The new information sheet provides key information on left ventricular noncompaction (LVNC), a genetic heart disease which is less well recognised compared to other cardiomyopathies. LVNC is a rare disease, caused by a gene fault affecting the […]

Genetic Testing: Saving Lives and Cost

Genetic testing is a valuable tool in identifying gene faults in family members who are at-risk of disease.  But a new study based on data from the Registry has found it can save costs as well as lives. Published in the prestigious Heart journal, the study found genetic testing of families with hypertrophic cardiomyopathy (HCM) […]