HCM and DCM Tweet Chat

Do you have questions about hypertrophic cardiomyopathy (HCM) or dilated cardiomyopathy (DCM)? Our friends at the Stanford Center for Inherited Cardiovascular Disease, USA (http://familyheart.stanford.edu/) will be holding a live tweet chat on Friday 5th February at 1pm (AEDST). Dr. Euan Ashley, Heidi Salisbury RN, MSN, CNS, and Colleen Caleshu MS, LCGC will answer your questions on Twitter. […]

Travel tips from Chris!

As the silly season is upon us, it’s that time of year when we pack our bags to visit family and friends or explore new exotic locations. So we thought we’d ask Prof Chris Semsarian about his tips for travelling in Australia and overseas when you have an inherited heart condition. Take a letter that […]

ICD Support Group Meeting

TOPIC: Genetic Heart Disease – Basics to the Latest Presenters include genetic counsellors and managers from the Centre for Genetics Education and the Department of Clinical Genetics at Royal North Shore Hospital. Friday 27th November 2015 11am – 1pm (light refreshments from 11am) Venue: Main Auditorium Level 5, Kolling Building. Reserve Road, Royal North Shore […]

Long QT Syndrome and the effects of energy drinks

  Do you have Long QT syndrome and are aged 18-45 years? We are currently running a study looking at the effects of energy drinks in patients with Long QT syndrome. If you are interested in participating in this study please contact the study coordinator Dr Belinda Gray on b.gray@centenary.org.au  

2015 Port Douglas Heart Meeting and Expo

Talks from the 2015 Port Douglas Heart Meeting and Expo are available online. They include a talk on “Genetics and Sudden Death in Athletes” by Prof Chris Semsarian (talk #40) as well as many other topics such as hypertrophic cardiomyopathy, atrial fibrillation, arrhythmias and genetics. The link to the website is http://www.heartone.com.au/port-douglas-2015/       […]

ICD Support Group Meeting – Making a cardiac comeback!

International guest speaker Dr Samuel Sears will be speaking at the next ICD support group meeting on “Making a cardiac comeback: confident living with an ICD” Tuesday 11th August 2015 5:30pm – 8:30pm Location: Main Auditorium, Royal North Shore Hospital. MAP RNSH For more information on this event and Dr Sears click here Invite – Sam Sears […]

HCM webinar by Prof Chris Semsarian

Prof Chris Semsarian has recently given a webinar for Invitae on hypertrophic cardiomyopathy (HCM). In this webinar Chris discusses HCM diagnosis, management and guidelines. To view the webinar click the link below, at the bottom of the page is a link to the webinar. You do need to register to watch it but registration is […]

Young ICD Network – Feed your heart and mind!

The next Young ICD Network meeting will be on Thursday 21st May at the Energize Health Club in Belrose, NSW. Young ICD Network is organised by Ann Kirkness at Royal North Shore Hospital (RNSH) for people under 50 years of age (or those young at heart) with an implantable cardioverter defibrillator (ICD) or considering an […]

Exercise & ICDs – Young ICD Network

Exercise & ICDs will be the focus of the next Young ICD Network meeting on Thurs 26 June at the Energize Health Club in Belrose. The group is organised by the Royal North Shore Hospital (RNSH) for people under 50 years of age (or those young at heart) with an ICD or considering an ICD. The next event […]

Living with an ICD: Exercise and playing sport

PDF Version Can I exercise and play sport if I have an ICD? This is one of the most frequently asked questions raised by people who have an ICD. The matter can be a confusing one. On one hand there is clear evidence that people with ICDs should avoid competitive, high-intensity sports. On the other […]