National Genetic Heart Disease Registry - Aiming to enrol every Australian family with genetic heart disease in the National Genetic Heart Disease Registry

Join the Registry today to create a better future for all Australian families with genetic heart disease.

Registry Coordinator Jodie Ingles writes about why the Registry is so important

Join the Registry, help save lives

We aim to enrol every Australian family with genetic heart disease in the National Genetic Heart Disease Registry. This vital information will help us save lives both now and in future generations. » Find Out More

Latest News and Events

New Left Ventricular Noncompaction (LVNC) Information Sheet OnlineOur LVNC information sheet is the latest addition to our genetic heart disease series for patients...
Genetic Testing: Saving Lives and CostGenetic testing is a valuable tool in identifying gene faults in family members who are at-risk...