Young ICD Network Meeting 2018

Thursday 1st March, 2018 Royal North Shore Hospital, Kolling Building Level 5 If you are young (less than 50 years) or young at heart and have an ICD, you and your family are invited to be a part of the Young ICD network. The aim of this group is to provide support, education and the opportunity to […]

2016 Patient Day – Talks Available

On Saturday 10th September, another successful Patient Day was held at the Charles Perkins Centre at Sydney University. We thank those who came and were able to hear members of our team discuss a variety of aspects of genetic heart disease. We also thank those who donated blood and consented for further research projects. For those […]

Genetic Heart Disease Clinic Patient Information Day

Saturday 10th September, 2016 Charles Perkins Centre Auditorium, University of Sydney The Genetic Heart Disease (GHD) Clinic at Royal Prince Alfred Hospital is pleased to welcome you to our patient day on Saturday 10th September, 2016. Partners, friends and family welcome. Hear the latest in Genetic Heart Disease from our team! Program 9:00am     […]

New Study: HCM and exercise

Feel like you should get out there and do a bit more exercise? Do you have hypertrophic cardiomyopathy (HCM) and are you aged 18-60 years old? We are currently running a study to help people with HCM increase the amount of exercise they do. If you are interested in participating, please contact the study co-ordinator […]

CANCELLED – Young ICD Network “Energize Your Heart”

EVENT CANCELLED Unfortunately due to small numbers the Young ICD network meeting scheduled for this Saturday 5th March has been cancelled. Apologies for any inconvenience. Please feel free to contact Ann (details below) if you have any questions or feedback. Saturday 5th March 2016: 11am  – 2:30pm Energize Health Club Belrose Join the Young ICD […]

HCM and DCM Tweet Chat

Do you have questions about hypertrophic cardiomyopathy (HCM) or dilated cardiomyopathy (DCM)? Our friends at the Stanford Center for Inherited Cardiovascular Disease, USA ( will be holding a live tweet chat on Friday 5th February at 1pm (AEDST). Dr. Euan Ashley, Heidi Salisbury RN, MSN, CNS, and Colleen Caleshu MS, LCGC will answer your questions on Twitter. […]

Travel tips from Chris!

As the silly season is upon us, it’s that time of year when we pack our bags to visit family and friends or explore new exotic locations. So we thought we’d ask Prof Chris Semsarian about his tips for travelling in Australia and overseas when you have an inherited heart condition. Take a letter that […]

ICD Support Group Meeting

TOPIC: Genetic Heart Disease – Basics to the Latest Presenters include genetic counsellors and managers from the Centre for Genetics Education and the Department of Clinical Genetics at Royal North Shore Hospital. Friday 27th November 2015 11am – 1pm (light refreshments from 11am) Venue: Main Auditorium Level 5, Kolling Building. Reserve Road, Royal North Shore […]

Long QT Syndrome and the effects of energy drinks

  Do you have Long QT syndrome and are aged 18-45 years? We are currently running a study looking at the effects of energy drinks in patients with Long QT syndrome. If you are interested in participating in this study please contact the study coordinator Dr Belinda Gray on  

2015 Port Douglas Heart Meeting and Expo

Talks from the 2015 Port Douglas Heart Meeting and Expo are available online. They include a talk on “Genetics and Sudden Death in Athletes” by Prof Chris Semsarian (talk #40) as well as many other topics such as hypertrophic cardiomyopathy, atrial fibrillation, arrhythmias and genetics. The link to the website is       […]