• Home
  • Patients & Families
    • Genetic Heart Diseases
      • 2016 Patient Day Presentations
      • Hypertrophic Cardiomyopathy (HCM)
      • Familial Dilated Cardiomyopathy (FDC)
      • Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
      • Long QT Syndrome (LQTS)
      • Catecholaminergic Polymorphic VT (CPVT)
      • Left Ventricular Noncompaction (LVNC)
      • Brugada syndrome
    • Testing for Genetic Heart Disease
      • Clinical Screening
      • Genetic Inheritance and Testing
    • Sudden Cardiac Death and Grief
    • Join the Registry
    • Cardiac Genetic Services
    • Quick Facts
    • News and Events
    • Helpful Links
    • Newsletter
  • Health Professionals
    • Join the ACGT Network (for health professionals)
  • Researchers
    • Publications
  • About Us
    • How to Enrol
    • Meet the Team
    • Research
    • Join the ACGT Network (for health professionals)
    • Our Supporters
    • Helpful Links
    • Contact Us
  • Home
  • /
  • About the Registry
  • /
  • Helpful Links

Helpful Links

Patient Groups and Foundations

Cardiomyopathy Association of Australia (CMAA) 

Sudden Arrhythmic Death Syndromes (SADS) Foundation Australia

Hearts4Heart

Splash of Red

Defib Your Club for Life

Heart Kids

Heart Foundation

Atrial Fibrillation Association

Arrhythmia Alliance Australia

Response for life

Genetic Alliance Australia

Grief and Bereavement Support Groups

NALAG Centre for Loss and Grief (Australia)

Lifeline Australia

Lifeline New Zealand

Skylight

Research and Medical Groups

Agnes Ginges Centre for Molecular Cardiology, Centenary Institute

Cardiac Society of Australia and New Zealand (CSANZ) Clinical Guidelines

Cardiac Inherited Diseases Group (CIDG) New Zealand


  • About the Registry
    • How to Enrol
    • Meet the Team
    • Research
    • Our Supporters
    • Contact Us
    • Helpful Links
Latest News and Events
  • ICD Support Group Meeting – Building Resilience and Thriving in Life November 17, 2021
  • COVID-19 and Genetic Heart Disease May 26, 2020
  • 2016 Patient Day – Talks Available November 30, 2016
  • Mental Health March 29, 2019
  • Can I go through airport screening with my device? January 30, 2019
  • Genetic Heart Disease Patient Information Day 2018 June 22, 2018
Connect and Share
 Recommend a friend Tweets by CSHeartResearch
  • Home
  • Contact Us
  • Enrol
  • About the Registry
  • Centenary Institute Privacy Policy

Copyright © 2011 National Genetic Heart Disease Registry
Web Design and Development by a2z Designs