How to Enrol a Patient?
If you would like to enrol a patient, please contact the Registry Coordinator for the Online Registration link or to arrange enrolment packs to be mailed to you.
Registry enrolment requires informed and voluntary consent by the individual, and Registry consent forms for children and adults are provided. Upon receiving signed consent, we contact the treating cardiologist for clinical information relating to this patient.
Recruitment to the Registry is also being carried out at major cardiac genetic clinics in Australia.
Alternatively, you can:
- give your patient the Registry website address (http://www.heartregistry.org.au) or
- the Registry Coordinator’s contact details (firstname.lastname@example.org or +61 2 9565 6185) so they can enrol when it is convenient.
If you would like more information about the Registry, please contact the Registry Coordinator by email or calling 02 9565 6185.
Guidelines for Genetic Heart Disease
Find out more about managing genetic heart conditions by viewing the latest clinical guidelines from the Cardiac Society of Australia and New Zealand.