Wednesday 24th November 2021 12:30pm – 1:30pm on Zoom Speaker: Tracey Busse Tracey is a survivor of a Sudden Cardiac Arrest & ICD Recipient. She also has qualifications in coaching & organisational psychology/ HR (B.Soc.Sc., BA Hons. & Masters of Management – HRM). Please RSVP to Ann Kirkness (for the Zoom link).Phone: 9463 1701 or […]
Many genetic heart disease patients have been asking about what they should do with respect to the coronavirus pandemic, and should they do anything extra given they have a genetic heart disease. The severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is the virus that causes coronavirus disease 2019 (COVID-19). The advice for people with genetic […]
Mental health is just as important as physical health and is often neglected. You can find out more about mental health and how to get help from our new fact sheet written by Kristie McDonald (Master of Clinical Psychology) and the Molecular Cardiology Program found here
We often get asked if it’s safe to go through airport screening or other anti-theft detectors when you have an implantable cardioverter defibrillator (ICD) or a permanent pacemaker (PPM). You can find the answer to this question and other frequently asked questions about devices via this link to the Medtronic website.
Saturday 8th September, 2018 Charles Perkins Centre Auditorium, University of Sydney The Genetic Heart Disease (GHD) Clinic at Royal Prince Alfred Hospital is pleased to welcome you to our patient information day on Saturday 8th September, 2018. Partners, friends and family welcome. Hear the latest in Genetic Heart Disease from our team! Program 9:00am Tea & coffee […]
Thursday 1st March, 2018 Royal North Shore Hospital, Kolling Building Level 5 If you are young (less than 50 years) or young at heart and have an ICD, you and your family are invited to be a part of the Young ICD network. The aim of this group is to provide support, education and the opportunity to […]
On Saturday 10th September, another successful Patient Day was held at the Charles Perkins Centre at Sydney University. We thank those who came and were able to hear members of our team discuss a variety of aspects of genetic heart disease. We also thank those who donated blood and consented for further research projects. For those […]
Saturday 10th September, 2016 Charles Perkins Centre Auditorium, University of Sydney The Genetic Heart Disease (GHD) Clinic at Royal Prince Alfred Hospital is pleased to welcome you to our patient day on Saturday 10th September, 2016. Partners, friends and family welcome. Hear the latest in Genetic Heart Disease from our team! Program 9:00am […]
Feel like you should get out there and do a bit more exercise? Do you have hypertrophic cardiomyopathy (HCM) and are you aged 18-60 years old? We are currently running a study to help people with HCM increase the amount of exercise they do. If you are interested in participating, please contact the study co-ordinator […]
EVENT CANCELLED Unfortunately due to small numbers the Young ICD network meeting scheduled for this Saturday 5th March has been cancelled. Apologies for any inconvenience. Please feel free to contact Ann (details below) if you have any questions or feedback. Saturday 5th March 2016: 11am – 2:30pm Energize Health Club Belrose Join the Young ICD […]
