Season’s greetings!

Best wishes from the Registry team for a happy holiday On behalf of all the Registry research team, we wish everyone a Merry Christmas and Happy New Year. 2013 has been a great year for the Registry with now over 1700 people enrolled.  We thank everyone who has joined the Registry and/or participated in our […]

Genetic heart disease and Pregnancy

For all women, there are a number of issues to consider when deciding whether to have a baby. However, for a woman with a genetic heart disease there are some important additional factors that need to be addressed to ensure a safe pregnancy for both the mother and baby. This information sheet will highlight some […]

Sydney: young ICD support group

On Thurs 31 Oct Royal North Shore Hospital (RNSH) will host the first-ever meeting of the Young ICD Support Group. The RNSH has created this event in response to younger people with ICDs (or considering an ICD) who were interested in a group that caters more towards their unique challenges. The evening will feature presentations […]

Beware of energy drinks

With increasing numbers of young people turning up to hospital after downing too many energy drinks, Professor Chris Semsarian discusses the potentially dangerous side effects. Improved awareness of the potential dangers associated with energy drinks is of great importance was the key recommendation made by myself along with my colleagues Dr Belinda Gray and Dr […]

Sydneysiders: Adjusting to your ICD

Learn about adjusting to life with an ICD at the next Royal North Shore Hospital ICD Group Meeting on Thurs 11 July. Having an ICD implanted can be a life-changing event that can affect you physically, socially and emotionally. Some people adjust quickly and easily to having an ICD, while for others it may take […]

Flu vaccine 2013: should heart patients get it?

As winter approaches, a common question many patients ask is “Should I have the flu vaccine this year?” Prof Chris Semsarian outlines what the flu vaccine is for Australia 2013 and who should get it? The Southern Hemisphere vaccine for the winter of year 2013 in Australia contains protection against 3 strains of influenza virus: • […]

Cardiac arrest & heart attack

People often think a heart attack and cardiac arrest are the same thing. Prof Chris Semsarian explains the difference Sudden cardiac arrest is one of Australia’s biggest causes of death and disability. It claims the lives of an estimated 22,000 to 33,000 Australians each year. But immediate CPR and defibrillation in the first few minutes […]

Q&A: family matters

What to do when at-risk family members are reluctant about getting screened by a cardiologist. Question: My children know I have a genetic heart disease but they still haven’t seen a cardiologist. Do you have any suggestions about how I can get them to see a doctor?  Answer: from associate genetic counsellor Laura Yeates Most […]

New: Brugada syndrome information sheet

We’ve added a Brugada syndrome information sheet to our genetic heart disease series. Brugada syndrome is a rhythm disorder of the heart that can cause the bottom chambers of the heart (known as the ventricles) to beat abnormally fast, which can lead to a person to feeling dizzy, fainting and it can sometimes result in […]

Kind-hearted support from the Mamma Lena & Dino Gustin Foundation

The Mamma Lena & Dino Gustin Foundation has generously awarded a grant to the Australian Genetic Heart Disease Registry to support our efforts in understanding genetic heart diseases. Throughout their lives, Mamma Lena and her husband Dino Gustin generously contributed to the Australian community to make a difference to people’s lives. From when they first […]